Two year tumor update/Good bye to mom

Today marks the two year anniversary since I had the whole tumor scare. I'm feeling great and almost back to full health but the anniversary is bittersweet since by some strange coincidence, today also marked the date of my mother's funeral, which I've talked about a bit on Twitter, but I don't think I've mentioned …

One year later, and some updates

A year ago today, I had the surprise of my life. Thanks to Charlie Park, you can relive the outpouring of support I described in my first post about the diagnosis on the site mathowielove (along with this explanation of it). I get a lot of email from people with similar health issues and from friends …

Adventures in brain tumors: My first not-good news

Today I got to see images from my most recent (and third) MRI brain scan and with it, the first not-great news to date. While my second MRI showed extraordinary promise with a near 50% reduction in tumor size, and over the past few months I've experienced a return in many of my hormone levels, …

Adventures in brain tumors: 90% good

It's been a while since I've posted a health update, but I've been going through tests every 3-4 weeks for the past six months and each time I'd tell myself I should make a post after the next set of results, but never ended up posting about it. The long-story-short is that I'm happy to …

Adventures in brain tumors: Hormone Medications FTW!

Earlier today I did a full scan of my brain via an MRI procedure. It wasn't as bad as I thought, and I even got to listen to music for most of the procedure (and the radiology dude commented at the end "Nice tunes dude. Tapes 'n Tapes? Love that album"). In the past couple …

Adventures in brain tumors: some ups, some downs

Another week, another set of appointments. This week I did a long appointment with an eye doctor, had an ultrasound of my heart, and then checkups with my neuro surgeon/endocrinologist. The eye appointment was excruciating as it involved many dilation drops over a period of around three hours. Once per hour I'd see the doctor …

Adventures in brain tumors: a frustrated start

I wish I had a copy of the images to show you, because they're kind of amazing. Imagine a cross-section shot of a head and what isn't brain, is tumor. In the small gap at the base of the brain, there it is, and it's huge. Tumor, all of it. So large you can't see …

Adventures in brain tumors: part one of many

  You know it's going be bad news when the ER doc slides a chair over to sit on. Good news is quick, a simple "You're gonna be fine! You can go home!" Seeing that chair slide over with her let me know I was in for some long explanations of bad news. Of course …